Concert for Hina August 23

Concert poster

HINA’S HEART PARTY – CONCERT
One more chance to HAVE FUN!
Great music all night long 6pm to 1am 
Come join the gang on Saturday 23 (next weekend) at
‘E Komo Mai Lounge’ parking lot
Baba B, Josh Tatofi, Sudden Rush,
Positive Motion, Loeka & Friends,
and other bands!
For tickets call me at 989-9363 

Hope to see you there !!!

Ticket

This entry was posted on August 15, 2014.

Operation A Success!

Some of Hina’s awesome surgical nurses, her anesthesiologist and coordinating nurse, Merla Takenaka. Her surgery day, day 2 in the chair, day 3 removing some of the tubes and monitor leads, day 4 “look dad, I am standing,” day 5 leaving hospital — incredible !!! (8 photos)

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Mahalo for all your support!
This entry was posted on August 13, 2014. 1 Comment

Hina’s Big Day

Please take a moment from your busy day to offer up a prayer or positive thought for our grand-niece Hina Lindsey as she undergoes open heart surgery this morning for a valve repair or possibly, replacement. Thanks.

https://www.facebook.com/hinasheart.org

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This entry was posted on August 6, 2014.

Hina’s Big Date Is Set!

UPDATE! Doctor finally set Wednesday, August 6th as Hina’s surgery date. We’ll be at a pre-op meeting Tuesday, then check-in for the surgery at 6 a.m. Wednesday. Prayers and hugs welcomed!

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The car wash was GREAT – rained all day and people still came – 87 cars and trucks – incredible !!! Mahalo nui, kākou!

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Weʻre getting ready for the concert on August 23rd, clearing the lot and securing the bands. Getting excited! Ticket info coming soon!

Hinaʻs Heart Bumper Stickers!

Sticker prices 48 inches long $40.
                         36 inches long $24.
                         18 inches long $12.

Hina’s Heart T-Shirts, from $20.00!

Check um out in the store!

This entry was posted on July 23, 2014.

Tribune-Herald: The heart of the matter: Family rallies around girl

Hawaii Tribune-Herald

The heart of the matter: Family rallies around girl with congenital illness

Three-year-old Hina Lindsey has always been an active little girl.

When playing with her three sisters — Kamau, 7, Naheana, 11, and Raena, 13 — Hina is in charge, says her mother, Raenelle Rosete.

“She likes to be the boss of everything,” Rosete said with a chuckle. “I think it’s because she’s the baby. She wants to tell everyone what to do. … And they do whatever she says. Her sisters will do anything to keep her quiet.”

When she’s not directing activities, Hina likes to jump on the trampoline and ride horses. Around the time she turned 3, she even taught herself to swim, her proud mom said.

But lately, Hina has slowed down a bit.

“She been real tired,” Rosete said. “She’s taking some medication so her heart doesn’t have to work as hard.”

When the little girl was born, doctors noted a heart murmur, but at the time they weren’t terribly concerned because many babies grow out of a murmur without any problems.

Hina, unfortunately, wasn’t one of those kids.

“In October, we took her for her 3-year-old checkup, and the pediatrician heard it again,” Rosete said.

In a phone interview Monday, Dr. Brenda Camacho explained Hina suffers from a “congenital cleft of the mitral valve” of her heart, giving rise to a condition known as “mitral regurgitation.” Essentially, a flap over her heart valve did not develop as it should have as she grew, and now blood is able to leak out of the girl’s heart and into her lungs.

If the leak is not fixed, Hina faces up to a 55 percent chance of heart failure in the future, Rosete said. The only solution is open heart surgery, and that’s a very complicated procedure on such a small child, requiring doctors with very specialized training.

“When I first found out, I really had a breakdown,” Rosete admitted. “Normally, I can cope with a lot of stuff. You think this is something that can’t happen to your family. I’m scared, I’m worried. I don’t want to deal with it, but you have to.”

Next month, the family plans to travel to Kapiolani Medical Center on Oahu to take part in a special program the hospital has had since 1995 called Heart Week. The program allows medical staff at the hospital to team up with specialists from the mainland to offer life-saving procedures that ordinarily couldn’t be performed in state.

“As a result of the program, many families have been spared the added stress and anxiety of traveling to the mainland for open-heart surgery,” according to Dr. Carlos Moreno, director of Kapiolani’s Pediatric Cardiac Program.

While Heart Week will make the experience easier on Hina and her family, Rosete said that it will still be a hardship for all of them. Rosete and other family members, including Hina’s father, Casey Lindsey, will have to take time off from work to travel to Honolulu, while paying for lodging and other expenses.

In an effort to help the family, friends organized a pair of fundraisers. This Saturday, from 8 a.m.-3 p.m., there will be a car wash at Bayfront Motors, charging $5 for cars and $8 for trucks.

Meanwhile, E Komo Mai Lounge, located at 340 Kuawa St., plans a special concert to benefit the girl. The show is set for 6 p.m.-1 a.m. Aug. 23 and will feature numerous local acts including Josh Tatofi, Loeka Longakit, Positive Motion, Bubba B, and more.

“We were contacted through my cousin, Konrad Kaipo, who told us the story about Hina, and it just touched our hearts,” said Jalyn Like, owner of E Komo Mai. “We knew we had to do something to help our community.”

In addition to the two upcoming fundraising events, Hina’s family also set up a website with information about her condition, and a link allowing people to donate money to help the family defray the costs associated with her surgery. For more information, visit www.hinasheart.org/.

Email Colin M. Stewart at cstewart@hawaiitribune-herald.com.

 

This entry was posted on July 16, 2014. 2 Comments

Hina’s Heart

Hina Lindsey

Malulani ao Hōkū  Kau ka Hōkū I Luna nā ‘Ōpua I ka Mahinahina  Lindsey

Parents: Casey Lindsey and Raenelle Rosete

Hina was born with a heart murmur 3 years ago. Her doctor watched it closely over the years, and it never seemed to interfere with her growth or life, until now. During an exam due to a common cold, her doctor noticed that her heartbeat now sounded different. He referred her to a heart specialist, and after several tests he notified us that her heart valve was now leaking. He explained that as she grew older, the valve “closure flap” didn’t develop as it should have, and now there is a space (cleft) in the flap that should seal the valve opening when her heart pumps, keeping the blood flowing into her heart and holding it there. Therefore, the blood that doesn’t get pumped into her heart is now leaking back into her lungs. The only way to correct this would be open heart surgery to sew the cleft mitral valve closed.

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Hina will be flying to Kapi‘olani Children’s Hospital where a team of pediatric surgeons are brought in from the mainland 5 times a year for what they call “Heart Week.” These surgeons operate on children here at home so Hawaii families don’t have to travel to the mainland, since no one in Hawaii does them. Hopefully, she will get an appointment this August for this corrective surgery. Hina will have to spend a week in the hospital to make sure she is healing properly before being released to fly home to Hilo. Hina’s parents will have to stay in Honolulu with her, learning about her care. They will then be able to reunite her with her three older sisters anxiously waiting at home.

This entry was posted on July 4, 2014. 6 Comments

Hilo Truck Wash for Hina July 19!

TRUCK WASH FOR HINA!

$8.00

Saturday July 19th 8am – 3pm

Bay Front Motors –

Kamehameha Ave in Hilo

Yes we’ll wash your car for $5 bucks.

And you can donate any other amount to help Hina
with her heart operation coming up in August.

This entry was posted on July 4, 2014.

Tutu’s Truck

Rebel Truck

After 12 years, I took “REBEL ” off my windshield and added HINA’S HEART.ORG. So please still wave at me. I loved my horse, but I love my granddaughter more !!

This entry was posted on May 27, 2014.